Waiting for the lab to confirm which bugs you’re growing can take days, and this delay can mean vital treatments aren’t started as quickly as they should be. To combat this, the Cystic Fibrosis Trust is co-funding two research studies to develop ways to speed up bug detection tests, funded through our Venture and Innovation Awards.
Ruth Keogh, Senior Lecturer in Medical Statistics at London School of Hygiene and Tropical Medicine, answers our questions about her current research into using statistical methods with patient data to answer questions about survival in people with cystic fibrosis. Find out more about how she tackles this challenging subject, and how you can help with her research.
Following announcements by NHS England and the European Medicines Agency (EMA) on access to Kaftrio, the first triple combination therapy for the treatment of cystic fibrosis (CF), Dr Keith Brownlee, Director of Policy, Programmes and Support explores the next steps, what this means for access in the UK, and how you can support our campaign for access to medicines.
Working with people with cystic fibrosis (CF) and clinicians the Cystic Fibrosis Trust has created simple summaries of the Service Specifications for specialist CF centres in England, explaining the care you're entitled to in plain language.
