Working with people with cystic fibrosis (CF) and clinicians the Cystic Fibrosis Trust has created simple summaries of the Service Specifications for specialist CF centres in England, explaining the care you're entitled to in plain language.
Meet Grace, who is a keen runner and has cystic fibrosis. Find out about her starring role in “Cerys and Grace take a deep breath”, a show on CBBC about managing competitive hobbies at the same time as keeping on top of the challenging symptoms of cystic fibrosis.
Grace Paget, who took up the role of Public Affairs Officer for Wales for the Cystic Fibrosis Trust last month, reflects on her first weeks in the position, the passion of those supporting the fight for Orkambi and where this national campaign is going next. Read her thoughts on Richard Pengelly’s response to the Trust’s Northern Ireland cross-party letter.
Cystic Fibrosis Trust’s latest Strategic Research Centre brings together world-class experts to find out how to prevent blockages in the guts of people with cystic fibrosis (CF).
A three-way partnership will bring together expertise in cystic fibrosis (CF) gene therapy, lentiviral development and production and the treatment of respiratory diseases to develop a gene therapy treatment.
A new study using international Registry data suggests encouraging health outcomes for those people with cystic fibrosis (CF) who have developed COVID-19, and highlights the need to stay safe and keep well.
