Ciara Long is the Cystic Fibrosis Trust’s second Physiotherapy Fellow, based at The Royal Brompton & Harefield NHS Trust, and has been focussing on the transition from paediatric to adult care. Here, she explains how helping people with CF to continue exercising during this important time can have a huge impact on helping them stay fit and healthy.
Half-term may be a matter of days away, but students up and down the country are well into exam season. From end-of-year tests to GCSEs, A-Levels to Finals, revising and exams can be stressful at the best of times, but even more so when there’s the small matter of a daily struggle with a life-limiting condition. Fear not, hope is at hand!
The European Commission has formally granted a licence to Kaftrio, the first triple-combination therapy to tackle the underlying cause of cystic fibrosis (CF), bringing hope to thousands of people living with CF across the UK and beyond.
Find out about some of the research the Cystic Fibrosis Trust are funding to unravel the links between cystic fibrosis (CF) and the environment, and what affect this work could have on the lives of people with the condition.
The European Medicines Agency (EMA) human medicines committee (CHMP) has today recommended that the licences for life-saving drugs Symkevi and Kalydeco should be extended so that they can be prescribed to younger children with cystic fibrosis (CF).
A new phase II clinical trial of the oral treatment Lynovex indicates the drug may work in conjunction with an existing standard therapy slow the worsening of infection in people with cystic fibrosis.
Chris Frappell, who has cystic fibrosis (CF) and is the founder of the motocycle product manufacturing company Tru-Tension, has won backing from multi-millionaire business magnate, Touker Suleyman, after appearing on Dragon’s Den last Sunday.
The deadline for health and wellbeing grant applications to help people with cystic fibrosis (CF) improve their health and quality of life is approaching.
