The European Medicines Agency (EMA) human medicines committee (CHMP) has today recommended that the licences for life-saving drugs Symkevi and Kalydeco should be extended so that they can be prescribed to younger children with cystic fibrosis (CF).
A new phase II clinical trial of the oral treatment Lynovex indicates the drug may work in conjunction with an existing standard therapy slow the worsening of infection in people with cystic fibrosis.
Chris Frappell, who has cystic fibrosis (CF) and is the founder of the motocycle product manufacturing company Tru-Tension, has won backing from multi-millionaire business magnate, Touker Suleyman, after appearing on Dragon’s Den last Sunday.
The deadline for health and wellbeing grant applications to help people with cystic fibrosis (CF) improve their health and quality of life is approaching.
Do you have a child with cystic fibrosis (CF) and want to find out more about their rights at school? We asked a legal expert to answer a few questions about CF, school and discrimination, to help you understand your rights and the rights of your child.
The Cystic Fibrosis Trust is kicking off its new era for research with a £1.5 million investment in two new Strategic Research Centres (SRC) on the topic of ‘personalised medicine’. Professor Jane Davies at Imperial College London will be leading a team exploring a ‘Personalised approach to Pseudomonas aeruginosa infection’. The second SRC ‘Restoring airway function using alternative chloride channels’ will be led by Dr Mike Gray at Newcastle University.
Read the letter from David Ramsden, Chief Executive at the Cystic Fibrosis Trust, to Matt Hancock MP, the new Secretary of State for Health and Social Care, and ask your MP to attend an adjournment debate in the House of Commons. ***updated 16/07/18***
We are all well-aware of the ways COVID-19 has impacted on our lives; however, there are some unexpected positives to come out of the pandemic, such as raising awareness and highlighting the importance of clinical trials to develop new medicines. Here, we talk about what we are doing to support trials developing new therapies for CF, and how our work is aligned with the new recommendations issued by the National Institute of Health Research (NIHR) for improving participants’ clinical trial experiences.
Parent and grandparents of people with cystic fibrosis and supporters of the Trust gathered in London on Tuesday for an update on the Trust’s vision for a life unlimited by cystic fibrosis for everyone born with the condition.
