The North American Cystic Fibrosis Conference (NACFC) is the world’s biggest research conference on cystic fibrosis (CF) research. Researchers gather to present and debate the latest scientific advances and gain inspiration on how they can continue to improve CF care. It is also an opportunity to air big questions, both those from within the CF community and across society. Here we share some of the highlights from this year’s conference, held online in October.
M runs her own law firm, is a mum to three-year-old H, and has cystic fibrosis (CF). This Mother’s Day, read an entry from her blog, Diary of a Lawyer Mum with CF, where she finds out exactly why children and IVs don’t always go together.
As we get set to cheer on our amazing Team CF runners in the Virgin Money London Marathon, we caught up with one of our dedicated runners Tim Hughes, who has cystic fibrosis (CF) and is running a marathon for the very first time.
Last October, 39-year-old Tim Hughes, who has cystic fibrosis, found out he would be running the Virgin Money London Marathon for the Cystic Fibrosis Trust. With just 28 days to go until the big day, we caught up with Tim to find out how his training is going and why he wouldn't recommend Go Karting in the run up to a race!
39-year-old Tim Hughes has cystic fibrosis and will be running his first marathon at the 2019 Virgin Money London Marathon for the Cystic Fibrosis Trust. Here, he tells us how a clinical trial gave him the boost he needed to start running, what it’s like squeezing in last minute nebs before a half marathon and how a bit of friendly competition keeps him committed to training.
