Shorter days? Colder nights? That's right, it's well and truly winter. Poppy Penhaul Smith, who has cystic fibrosis (CF) and is moving to Austria, has given us 10 of her top tips for a healthy and happy winter, from staying active to banishing sickly partners to the spare room!
Recently we asked you to share your top tips for getting through the wintertime when you live with cystic fibrosis. Here, our Community Manager Emma shares some of your suggestions and a few of her own of how she has managed her cystic fibrosis (CF) during colder months and what things have helped her get through this time in the pandemic.
As flu season draws near, the Cystic Fibrosis Trust is urging friends and family of people with cystic fibrosis to protect their loved ones and “give flu the jab”.
The Cystic Fibrosis Trust and CF teams are aware that the news about Kaftrio becoming available in the UK came quite suddenly. While this is of course welcome news for many, lots of different emotions are being experienced in the CF community at the moment. To support those who may be facing their own issues, the Trust and the UK Psychosocial Professionals in CF have worked together to offer this joint statement to the CF community.
Grace Paget, Public Affairs Officer at the Cystic Fibrosis Trust, gives an update on yesterday’s precision medicines debate in Holyrood, and the difference it could make to people like Hannah, who has cystic fibrosis (CF) and fears she may have to leave her home on the Isle of Skye, where her family have lived for six generations, unless precision medicines are made available on the NHS.
