In 2013, Philip Grosset was facing an unfair dismissal from his job as the Head of English at a school in York. Since then, he has taken the issue to court, won substantial compensation, and ensured staff at the school undergo further training. We asked Philip for a few tips for employers and employees on handling cystic fibrosis in the workplace.
Lynsey Beswick, Public Affairs Officer at the Cystic Fibrosis Trust, will share her views on Orkambi® from a patient perspective with the Scottish Medicines Consortium (SMC) today.
Find out how you can take part in the Health and Social Care Committee’s inquiry into the availability of Orkambi and other precision medicines on the NHS, and how your words could make a difference. *Submissions are now closed - this story was updated on 01/03/19*
Yesterday’s debate in Westminster Hall on access to Orkambi for people with cystic fibrosis (CF) demonstrated once again the incredible force of the CF community. Fresh from the action, Lynsey Beswick, Public Affairs Manager at the Trust, presents a firsthand account of a unique and emotional event.
Looking for resolution inspiration this January? Padraic McGlinchey is dispelling the rumour that you can’t do things by halves by running and rowing a half marathon a week for a year to raise money for the Cystic Fibrosis Trust.
In late December 2018, NHS Scotland and Vertex Pharmaceuticals reached a deal on access to precision medicines through a system called PACS Tier 2. Find out how this system works and what it could mean for people with CF in Scotland.