As the Trust unveils the second round of Clinical Excellence and Innovation Awards, supporting ground-breaking projects in clinical care, we hear from PhD student Helen Douglas, who is part of the Project Fizzyo team supported through an award to Great Ormond Street Hospital.
We know that the coronavirus (COVID-19) pandemic has meant changes to care for people with cystic fibrosis (CF). At the Cystic Fibrosis Trust, we’re negotiating behind the scenes to make it easier for you to monitor your health remotely. While these negotiations are ongoing, we wanted to update you on how researchers within the Trust’s latest digital health research programme ‘Project Breathe’ are responding to COVID-19, to help you monitor your health at home.
The Cystic Fibrosis Trust has today expressed dismay after discussions to make ground-breaking new precision medicines available on the NHS appear to be stalling.
One of the major elements driving the Cystic Fibrosis Trust’s Clinical Trials Accelerator Platform is Patient & Public Involvement – or PPI for short. This means putting the community at the heart of our commitment to supporting access to clinical trials. For CF Week, PPI Coordinator Lorna Allen brings you an update on how the community is helping develop this major body of work.
A new treatment combining ivacaftor and tezacaftor could improve lung function and cut outbreaks of infection according to two Phase 3 studies published by Vertex Pharmaceuticals.