As flu season draws near, the Cystic Fibrosis Trust is urging friends and family of people with cystic fibrosis to protect their loved ones and “give flu the jab”.
The Cystic Fibrosis Trust and CF teams are aware that the news about Kaftrio becoming available in the UK came quite suddenly. While this is of course welcome news for many, lots of different emotions are being experienced in the CF community at the moment. To support those who may be facing their own issues, the Trust and the UK Psychosocial Professionals in CF have worked together to offer this joint statement to the CF community.
Grace Paget, Public Affairs Officer at the Cystic Fibrosis Trust, gives an update on yesterday’s precision medicines debate in Holyrood, and the difference it could make to people like Hannah, who has cystic fibrosis (CF) and fears she may have to leave her home on the Isle of Skye, where her family have lived for six generations, unless precision medicines are made available on the NHS.
Find out more about what Universal Credit is, when and how it's being introduced, the benefits it will be replacing, how the new system might affect you and how the Cystic Fibrosis Trust can help. *This news story was updated on 04/10/18*
During the UK CF Conference this month we launched the Clinical Trials Accelerator Platform with a call for a Patient and Public Involvement advisor - but what is it, and why should you apply?
