This Valentine’s Day, meet Chris, who has cystic fibrosis, and Michaela, who have been married for a year and a half and have a two and a half year old son, Elliott. We spoke to them about their experiences taking part in the Great North Run together and how going through the ups and downs of CF treatments and hospital admissions has taken their relationship from strength to strength.
This Valentine's Day we're exploring love and cystic fibrosis. Here, proud wife Nicola tells us about her experience of falling in love with someone with cystic fibrosis.
This Valentine's Day we're exploring love and cystic fibrosis. Here, proud husband Gearoid tells us about his experience of falling in love with someone with cystic fibrosis.
In a week where technology is dominating the news and media, Senior Impact Adviser Belinda Cupid looks at what the Cystic Fibrosis Trust is doing in the cutting-edge field of artificial intelligence and machine learning.
Researchers need your help to understand how cystic fibrosis can impact individuals, the family and everyday life, and the support that’s missing that could make a difference.
Using data to understand health has never been more important than during this global coronavirus (COVID-19) pandemic. The UK Cystic Fibrosis Registry has moved quickly in its response to COVID-19 with a helpline to make it easier for clinical teams to report data, weekly reporting of statistics and a global collaboration to gather data on COVID-19 in cystic fibrosis.
The UK CF Registry, a secure centralised database, sponsored and managed by the Cystic Fibrosis Trust, which records health data on consenting people with cystic fibrosis (CF) in England, Wales, Scotland and Northern Ireland, has joined the UK Health Data Research Alliance along with seven other organisations.
New UK Cystic Fibrosis Registry data shows a 10% rise in the number of people living with CF in the UK since 2011, and a CF population living longer than ever before, with a median predicted survival of 45.1 for 2015.
