With the coronavirus (COVID-19) outbreak, lockdown and shielding, this year has undoubtedly been different. However, despite these hard times, the cystic fibrosis (CF) community continues to amaze us with their positivity, perseverance and dedication to our fight for a life unlimited by cystic fibrosis. To mark the end of summer, we recap some of this year’s imaginative fundraising events and extend an enormous thank to everyone who has supported us.
Two global Phase III trials using the compound tezacaftor in combination with ivacaftor (Kalydeco) have revealed its impact for people with various combinations of the cystic fibrosis (CF) gene.
Many of us will have had events cancelled this year that we’d been looking forward to, but your efforts need not go to waste! When Stuart had to change his race plans for 2020, he decided to take part in a virtual running event. In this blog, he shares how he took part while shielding, what kept him motivated, how a virtual event meant he could celebrate properly with his family and why he’ll be taking part in our Running Festival this September.
Every young person with cystic fibrosis (CF) has a story to tell, but how can we help them tell those stories together and overcome the barrier of cross-infection? Bahar, Digital Youth Outreach Officer at the Cystic Fibrosis Trust, takes a look at how an innovative story-telling workshop, run by On Our Radar, helped a group of young people living with CF found friendship, understanding and confidence through storytelling.
