The James Lind Alliance Priority Setting Partnership in cystic fibrosis (CF) is calling on the CF community to help them turn your research priorities into ideas for new clinical trials.
The Prime Minister’s Party Conference speech was splashed across the news for reasons Theresa May would rather forget but at Trust HQ, we were celebrating a major campaigning victory for people with cystic fibrosis – as Mrs May announced that the UK Government would be tackling the organ donor crisis head on. We asked Nick Medhurst, Head of Policy at the Trust, about the new opt-out legislation, and what it could mean for people with cystic fibrosis.
Meet this year’s CF’s Got Talent! winner Sara Cuevas Ocaña, who works on the Trust-funded Strategic Research Centre “INOVCF”, investigating non-CFTR approaches to CF therapies, and presented her research on stem cells to our online audience at this year's UK CF Conference.
The North American Cystic Fibrosis Conference (NACFC) is the world’s biggest research conference on cystic fibrosis (CF) research. Researchers gather to present and debate the latest scientific advances and gain inspiration on how they can continue to improve CF care. It is also an opportunity to air big questions, both those from within the CF community and across society. Here we share some of the highlights from this year’s conference, held online in October.
M runs her own law firm, is a mum to three-year-old H, and has cystic fibrosis (CF). This Mother’s Day, read an entry from her blog, Diary of a Lawyer Mum with CF, where she finds out exactly why children and IVs don’t always go together.