NHS England has announced a deal for access to the life-saving drug Kaftrio (called ‘Trikafta’ in the US) on the day it receives its European licence, bringing hope to thousands across the UK.
Following announcements by NHS England and the European Medicines Agency (EMA) on access to Kaftrio, the first triple combination therapy for the treatment of cystic fibrosis (CF), Dr Keith Brownlee, Director of Policy, Programmes and Support explores the next steps, what this means for access in the UK, and how you can support our campaign for access to medicines.
Becky Kilgariff, Head of Information, Support and Programmes at the Cystic Fibrosis Trust, explains some of the ways we support people with cystic fibrosis (CF) to achieve balance in their lives, and how we’ve adapted this support in response to the coronavirus (COVID-19) pandemic.
Over the past few days we have heard the ups and downs of balancing cystic fibrosis (CF) and, in each, a strength and determination has shone through. Today, 23-year old Demi from Worcestershire shares how she went from growing up hiding her invisible illness to embracing it whole-heartedly.
He’s defied Dragons and all the odds to launch a world-famous luggage brand, and now as Rob Law MBE unveils his new autobiography, the entrepreneur talks to us about some of the lessons he has learned from a life balancing cystic fibrosis (CF), the ever-changing business world and raising a family.
Today, we are talking about how people with cystic fibrosis (CF) and their families have been balancing their condition during the coronavirus pandemic (COVID-19). In this blog, Sophie tells us about the lifestyle that she and her husband have adopted to support their son’s health, and the challenges they’ve faced while shielding as a family.