Amid the excitement surrounding the announcement that 6 to 11 year olds in the UK will be able to access the modulator drug Kaftrio, we know that for the many in our community who don’t benefit, the future will still feel uncertain. We won’t stop until everybody with CF can access the treatments they need. Here, our Director of Research Dr Lucy Allen, tells us about some of the exciting research that’s underway that could help those who don’t benefit from CFTR modulators.
Following the exciting announcement that the life-changing CF drug, Kaftrio, has been approved for use across the UK for 6 to 11 year olds, we caught up with Stacey, whose eight-year-old daughter Katy has CF, to find out about the difference this could make to Katy’s future.
Following the announcement that Kaftrio has been approved for use for eligible children aged 6-11 in Northern Ireland, we are delighted that the MHRA has also now approved the life-changing CF drug for children across the rest of the UK too. This is a huge milestone in the Kaftrio journey following years of campaigning by people with cystic fibrosis and their families.
The life-changing cystic fibrosis drug, Kaftrio, has been approved for use for eligible children aged 6-11 in Northern Ireland. This is a huge milestone in the Kaftrio journey following years of campaigning by people with cystic fibrosis and their families.
We know that the rising cost of living and the financial burden of living with a life-long condition is a worry for many people in the CF community. This CF Week, we're #liftingthelimits, so everyone can access the support they need.
Here, Sangeeta and Nicky from our Welfare team share their top tips to help the community cope with the increased cost of living. If you would like to talk things through, please get in touch with our Helpline, seek advice locally or speak to your CF team.
A new YouGov poll shows that the majority of people (84%) don’t know that those with cystic fibrosis (CF) are advised not to meet in person, in case they pass on deadly bugs to one another.
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing stories from across the CF community about life with CF. Gillian, 36, from Glasgow had made the decision not to have children – until a ‘super response’ to Kaftrio changed everything.
