As we get set to cheer on our amazing Team CF runners in the Virgin Money London Marathon, we caught up with one of our dedicated runners Tim Hughes, who has cystic fibrosis (CF) and is running a marathon for the very first time.
Last October, 39-year-old Tim Hughes, who has cystic fibrosis, found out he would be running the Virgin Money London Marathon for the Cystic Fibrosis Trust. With just 28 days to go until the big day, we caught up with Tim to find out how his training is going and why he wouldn't recommend Go Karting in the run up to a race!
39-year-old Tim Hughes has cystic fibrosis and will be running his first marathon at the 2019 Virgin Money London Marathon for the Cystic Fibrosis Trust. Here, he tells us how a clinical trial gave him the boost he needed to start running, what it’s like squeezing in last minute nebs before a half marathon and how a bit of friendly competition keeps him committed to training.
At the end of his first year on the transplant waiting list, Charles Michael Duke produced a list of some of the things he had learned since being accepted for transplant. For Organ Donation Week 2017 (4-10 September), Charles revisits what he’s learned.
The Cystic Fibrosis Trust has made a submission to a parliamentary inquiry into genomics and genetic editing, laying out its views on this important area of research.
The UK CF Registry will be taking a pivotal role in monitoring the effectiveness of Orkambi and Symkevi once they are in the hands of people with cystic fibrosis (CF) across the country. Here, Rebecca Cosgriff, Director of Data and Quality Improvement at the Cystic Fibrosis Trust, explains how the Registry will help bodies across the UK to evaluate the efficiency of these drugs, and future therapies.
Our latest edition of ‘CF Life’ magazine featured William Marler, who is one of several podcasters sharing the everyday experiences of people living with cystic fibrosis. We spoke to William and a fellow podcaster, Tiff, about why they got into podcasting and the importance of providing a voice to the CF community.
