Last week, we published our ‘Your life and CF report’, sharing the findings from our UK-wide survey, which has allowed us to gather crucial data and first-hand accounts of life with CF.
As part of CF Week 2023, 59-year-old Jane from our involvement group shares her experience participating in over 20 clinical trials, having an input in CF research and her journey with Kalydeco and Kaftrio.
CF Week 2023 starts today, and it’s all about celebrating the incredible progress we’ve already made in CF research, and looking forward to the breakthroughs we can make in the future. We've put together a list of five things that give us hope for the future.
Ahead of Father’s Day next week, we sat down with Craig, a dad with cystic fibrosis, who told us all about having his son Dustin through IVF and being a father with CF.
Cystic fibrosis (CF) is often described as an invisible condition. As part of our #CFTruths ‘You don't see CF’ campaign we hear from Dan, who shared his experience of living with CF.
We are currently recruiting someone to join our Board of Trustees.
Why not become a Trustee and help achieve a life unlimited for everyone affected by cystic fibrosis. The diverse members of the Board combine their experiences and expertise to guide the Chief Executive, who works with the Senior Management Team to achieve the charity's vision.
