Read an update on the Health and Social Care Committee Inquiry from the Cystic Fibrosis Trust’s Chief Executive, David Ramsden, and find out what the next steps are in the process.
Jacob is 20 years old and is in his third year of an integrated masters in Natural Sciences at Durham University. He is also the first person with cystic fibrosis (CF) to take part in our summer studentship programme where undergraduates work with a supervisor on a project over the summer vacation. Jacob’s supervisor on his studentship was Professor David Sheppard, who is leading our Strategic Research Centre investigating the F508del mutation, which around 90% of the UK CF population carry at least one copy of.
Oli and Mahi matched on Tinder last year. The catch? After talking for a couple of days, they found out they both had cystic fibrosis. Due to the risks of cross-infection, they knew they could never meet, but remained virtual friends. With the release of Hollywood film ‘Five Feet Apart,’ we’re speaking to Oli and Mahi to find out what dating is really like for people with cystic fibrosis and how they handle some of the hurdles it throws up.
The Cystic Fibrosis Trust’s Registry team is currently working on a project to streamline how cystic fibrosis clinics transfer data into the UK Cystic Fibrosis Registry, and how baseline data is shared back to people with cystic fibrosis and their clinical teams. Over a period of a year, Jorge Meira, one of this year’s Darzi Clinical Fellows is working with the team, adding his clinical experience and insight to enhance the project.
Martin Smith, who has cystic fibrosis (CF) and his seven-year-old daughter Emily, who both featured in the Cystic Fibrosis Trust’s 2017 Christmas appeal, have written a children’s book together. Find out how, between Emily’s creative characters and Martin’s writing skills, they helped to bring ‘The Christmas Poop Plan’ to life.
Two cystic fibrosis (CF) researchers have been elected to become Fellows of the Academy of Medical Sciences. The Fellows are an elite group of researchers recognised for their exceptional contribution to advancing biomedical science. These experts are making innovative and exciting progress in tackling some of the key questions to improve our understanding and treatment of cystic fibrosis.
Jemma Wood, 25, with cystic fibrosis (CF) graduated from university in 2014. After graduating she joined a management consulting graduate scheme, where she has worked for the last three years. She looks back on her time at university, and how taking time out to take care of herself when she was unwell meant that she made the best decisions for her.
We all have mental health, good or bad, in the same way that we have physical health, and that means people with CF can experience mental health problems in the same way that people without the condition can.
