This week is Co-production Week in the UK. Here, Tracy Turc-Milloy, Clinical Quality Improvement Manager, explains the concept of co-production and how we are working to put people with cystic fibrosis (CF) at the centre of decisions about our projects and strategies.
Coping with the death of someone close can be one of the hardest things you’ll ever have to deal with, and the Christmas period can be especially challenging for those who are bereaved. That’s why we have put together some information on coping with the death of a loved one at Christmas time.
An MBE for services to people with cystic fibrosis (CF) and a British Empire Medal (BEM) for an ex civil servant living with the condition are among the awards in the Queen’s New Year’s Honours List this year.
Whether a drug passes or fails a clinical trial, there’s something to be learned from the outcome. Find out more about why any result takes us closer to a life unlimited by cystic fibrosis (CF), and how we’re working to ensure easier access to more clinical trials for everyone with CF in the UK.
At this year’s North American Cystic Fibrosis Conference, Dr Claire Edmondson won a prize for her research on the Trust-funded ‘CLIMB-CF’ study investigating the feasibility of remote monitoring in children with cystic fibrosis (CF). Here we explain more about it
In our December edition of CF News we listed five things about Christmas that you’ll only get if you’ve got cystic fibrosis. But we know that’s just a small piece of the (inevitable Boxing Day) puzzle, so we asked you if we’d missed anything off the list. Here are six (more) things about Christmas that you have to think about if you’ve got cystic fibrosis.
Concert in the Clouds, a team made up of musicians and explorers, have made it their musical mission to break the world record for the ‘Highest Classical Piano Performance’ while raising funds for the Cystic Fibrosis Trust by taking a piano into the Himalayas.
