In the March issue of CF Life magazine you met Marie, a paediatric CF social worker who works for Barnardo's. Here, Eileen, an adult CF social worker at Kings College Hospital who has specialised in CF care for nine years, explains her role and how she helps to support people with CF and their families.
The Cystic Fibrosis Trust is once again bringing you the latest in cystic fibrosis (CF) research, straight from the scientists funded by your donations and fantastic fundraising.
Doctors group write to Vertex Pharmaceuticals, politicians and decision-makers offering support in making breakthrough in negotiations. *** Updated 11/05/18 ***
Last week the Cystic Fibrosis Trust released a brand new video, ‘The A-Z of cystic fibrosis’, where children with CF talk about what the condition means to them. Hear from Michelle Rostant-Bell, Information Manager at the Trust, and find out how the video came about and what it was like working on this exciting project.
Newly published research funded by Cystic Fibrosis Trust has shown that babies with cystic fibrosis (CF) are born weighing less than babies without the condition, even allowing that they are more likely to be born prematurely.
