Whether a drug passes or fails a clinical trial, there’s something to be learned from the outcome. Find out more about why any result takes us closer to a life unlimited by cystic fibrosis (CF), and how we’re working to ensure easier access to more clinical trials for everyone with CF in the UK.
At this year’s North American Cystic Fibrosis Conference, Dr Claire Edmondson won a prize for her research on the Trust-funded ‘CLIMB-CF’ study investigating the feasibility of remote monitoring in children with cystic fibrosis (CF). Here we explain more about it
In our December edition of CF News we listed five things about Christmas that you’ll only get if you’ve got cystic fibrosis. But we know that’s just a small piece of the (inevitable Boxing Day) puzzle, so we asked you if we’d missed anything off the list. Here are six (more) things about Christmas that you have to think about if you’ve got cystic fibrosis.
Concert in the Clouds, a team made up of musicians and explorers, have made it their musical mission to break the world record for the ‘Highest Classical Piano Performance’ while raising funds for the Cystic Fibrosis Trust by taking a piano into the Himalayas.
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David Ramsden, Chief Executive
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Monday’s Parliamentary debate in the House of Commons saw 17 MPs share the personal stories of people with cystic fibrosis (CF) across the UK, and over 40 MPs attend to support the issue of access to life-saving drugs. Following the debate, we hear from David Ramsden, Chief Executive of the Cystic Fibrosis Trust about what’s next for the Trust’s campaign for access to life-saving drugs.
Experts in gastrointestinal (GI) health from across Europe came together at the Trust’s latest research ‘sandpit’ last week to explore innovative approaches to complications in the GI tract, one of the major causes of ill health faced by people with cystic fibrosis.
Last month, the Scottish Government announced a different approach to disability benefits, right through from application to the appeal process. Here, our Welfare and Rights Advisor, Sangeeta Enright, explains what will change for people with CF applying for disability benefits in Scotland.
