Emma Lake, Community Manager at Cystic Fibrosis Trust, who lives with cystic fibrosis (CF), takes a look at what people with CF and their families thought of how the condition was represented in Casualty, from covering clinical trials to unrealistic lung function.
People with CF are vulnerable to lung infections like Pseudomonas and Mycobacterium abscessus. Read about some of the well-known bugs, and find out what we’re doing to combat them.
On Monday, the Daily Express launched their Christmas fundraising appeal in partnership with Cystic Fibrosis Trust. The Daily Express and their readers have been at the heart of the fight for access to precision medicines, along with Carlie Pleasant, a young mum with cystic fibrosis (CF), who wrote an inspiring weekly diary in the Daily Express as well as interviewed Health Secretary Matt Hancock and Vertex CEO Jeff Leiden. She shares with us what life with CF is like at Christmas and how the Trust has supported her in 'moments of need'.
Seven-year-old Molly-Mae has won Cystic Fibrosis Trust's Christmas card competition with a striking black and yellow design, which will be available to buy in the Trust’s Christmas shop later this year.
Following last week’s rally, Carlie, a long-time campaigner with cystic fibrosis (CF), spoke to Dr Jeffery Leiden, Chief Executive of Vertex Pharmaceuticals, to give her own account of living with CF and why access to medicines like Symkevi and Orkambi is so vital to people like her. In this blog, Carlie shares her story and her reaction following the meeting.
Cystic Fibrosis Trust forms new strategic partnership with the University of Cambridge to develop life-changing treatments for people with cystic fibrosis.
