Seven-year-old Molly-Mae has won Cystic Fibrosis Trust's Christmas card competition with a striking black and yellow design, which will be available to buy in the Trust’s Christmas shop later this year.
Following last week’s rally, Carlie, a long-time campaigner with cystic fibrosis (CF), spoke to Dr Jeffery Leiden, Chief Executive of Vertex Pharmaceuticals, to give her own account of living with CF and why access to medicines like Symkevi and Orkambi is so vital to people like her. In this blog, Carlie shares her story and her reaction following the meeting.
Cystic Fibrosis Trust forms new strategic partnership with the University of Cambridge to develop life-changing treatments for people with cystic fibrosis.
To mark Children in Need 2017, we’re highlighting our Building Brighter Futures programme, part of the Trust’s Youth Empowerment Project for young people aged 11-25 affected by cystic fibrosis (CF), which Children in Need have helped support. We sat down with Digital Youth Outreach Officer Bahar Mustafa to find out a little bit more about her role and the project.
As traditional as a Boxing Day sporting fixture and the Queen’s Speech, every year the Royal Institution hosts a series of Christmas Lectures. As the final lecture in this year’s series on ‘Who am I’ covers emerging genetic technologies, it seemed timely to share a blog from this year’s CF’s Got Talent competition winner Afroditi Avgerinou, whose PhD research is on gene editing. Here Afroditi reflects on her work in gene editing, the competition and what it meant to her.
