The Cystic Fibrosis Trust is helping the University of Warwick’s Imagining Futures project launch their ‘Cystic Fibrosis Screening Survey (UK)’. The project is looking at social and ethical implications of the last 50 years of progress in genetics on a variety of lifelong conditions. Genetic editing and genetic testing can of course be a sensitive area and can often lead to complicated and divisive debates, which is why the Trust wants to make sure the views and opinions of those most likely to be affected are heard. To help give more context to this work and the survey, we’ve asked Dr Felicity Boardman, the lead researcher for the Imaging Futures project, to explain some of the background.
After receiving some fantastic entries last year, we are pleased to announce that we are running the Children’s Christmas Card Competition again this year.
Cystic Fibrosis Trust and Alan Turing Institute partner to focus mathematical brilliance on the issue of making accurate predictions about the course of cystic fibrosis (CF).
This week is Co-production Week in the UK. Here, Tracy Turc-Milloy, Clinical Quality Improvement Manager, explains the concept of co-production and how we are working to put people with cystic fibrosis (CF) at the centre of decisions about our projects and strategies.
Coping with the death of someone close can be one of the hardest things you’ll ever have to deal with, and the Christmas period can be especially challenging for those who are bereaved. That’s why we have put together some information on coping with the death of a loved one at Christmas time.
An MBE for services to people with cystic fibrosis (CF) and a British Empire Medal (BEM) for an ex civil servant living with the condition are among the awards in the Queen’s New Year’s Honours List this year.
