Blog -
David Ramsden, Chief Executive
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Published Date:
Monday’s Parliamentary debate in the House of Commons saw 17 MPs share the personal stories of people with cystic fibrosis (CF) across the UK, and over 40 MPs attend to support the issue of access to life-saving drugs. Following the debate, we hear from David Ramsden, Chief Executive of the Cystic Fibrosis Trust about what’s next for the Trust’s campaign for access to life-saving drugs.
Experts in gastrointestinal (GI) health from across Europe came together at the Trust’s latest research ‘sandpit’ last week to explore innovative approaches to complications in the GI tract, one of the major causes of ill health faced by people with cystic fibrosis.
Last month, the Scottish Government announced a different approach to disability benefits, right through from application to the appeal process. Here, our Welfare and Rights Advisor, Sangeeta Enright, explains what will change for people with CF applying for disability benefits in Scotland.
Today, we are talking about how people with cystic fibrosis (CF) and their families have been balancing their condition during the coronavirus pandemic (COVID-19). In this blog, Sophie tells us about the lifestyle that she and her husband have adopted to support their son’s health, and the challenges they’ve faced while shielding as a family.
Each day during CF Week, we’ll be sharing stories from the cystic fibrosis (CF) community about how they balance the challenges of CF with everyday life. In the first of these, Derek talks about getting a CF diagnosis at 30, acceptance and living life your way.
Over the past few days we have heard the ups and downs of balancing cystic fibrosis (CF) and, in each, a strength and determination has shone through. Today, 23-year old Demi from Worcestershire shares how she went from growing up hiding her invisible illness to embracing it whole-heartedly.
In this blog in our CF Week series about how our community balances the challenges of cystic fibrosis (CF) with everyday life, Andrew shares his experiences and gives his tips for finding balance in treatment, exercise and relationships.
