'Breathe - Life Unlimited' is a world-first music track built using a series of breaths from people living with cystic fibrosis (CF) and celebrities such as James Corden.
In recognition of International Women’s Day, we are celebrating Dr Mary Goodchild, who dedicated her working life to helping those affected by cystic fibrosis (CF) and supported the Cystic Fibrosis Trust to the end with a gift in her will. To commemorate her memory, and to thank Mary for her work and the generous legacy she left to the Trust, we invited some of her family and close colleagues to share their stories of her and her clinical and research career.
This week saw the third anniversary of the precision medicine Orkambi being licensed for use in the UK, while arguments over funding mean people with CF continue to be denied access. The Trust’s Head of Policy and Public Affairs, Nick Medhurst, reports back from a week of events that united the whole CF community to turn up the noise on the vital issue of access to medicines.
Starting your own business is challenging for anyone, especially when you have cystic fibrosis (CF). It’s important for you to manage hospital stays, physio and medication. We caught up with fashion designer Laura Beattie at her stall in London’s Coutts Christmas Market last month to get her top tips on starting your own business when you live with CF, and hear how she was inspired to pursue her dream career as an entrepreneur.
Fiona has completed Great Strides three times as a walker and has also been a support driver and event volunteer. As we gear up for the return of Great Strides in 2021, she tells us about the many benefits that training walks brought her, the team spirit, and what keeps bringing her back.
On her 400-mile Ride for Research challenge, Director of Research Dr Lucy Allen paid a virtual visit to one of the Strategic Research Centre (SRC) on Pseudomonas that we fund, based at Imperial College London. Here, she caught up with Dr Dominic Hughes – cystic fibrosis (CF) clinician, researcher, and member of the SRC team – where he shared his passions for CF research and cycling, his involvement in the SRC and what a life unlimited by CF means to him.
