Today the Royal College of Physicians (RCP) has published a new survey showing that more than half of people (55%) surveyed in a YouGov poll feel their health has been negatively affected by the rising cost of living – mostly due to the increasing costs of heating, food and transport.
Find out about the range of Venture and Innovation Awards that the Cystic Fibrosis Trust is funding to research lung infections in people with cystic fibrosis (CF).
With 87% of people with CF worried about the cost of living, it’s more important than ever that the Government #reviewthelist of health conditions exempt from prescription charges
Today we have joined forces with charities across the UK to ask the Secretary of State for the Department for Work and Pensions (DWP), Thérèse Coffey, to stop plans to restart ‘managed migration’.
Since Kaftrio was licenced in 2020, many people with cystic fibrosis have shared their experiences of the treatment including the different ways it has affected their mental and physical wellbeing. We recently updated our factsheet on Kaftrio, reflecting these varied and often complex experiences.
Here, our Director of Medical Affairs Dr Keith Brownlee addresses the subject of mental health and Kaftrio, sharing the latest advice from the CFMA and highlighting the support available from your CF teams and Cystic Fibrosis Trust.
Poppy, 31, from Wales, was the winner of our Helen Barrett Bright Idea Award back in 2015. Following her first solo art exhibition, Poppy tells her story of living with CF and receiving a double lung transplant, the impact of CF on her mental health, and why budding artists should ‘stop scrolling and start experimenting’.
The purpose of this observational study is to collect information on the clinical characteristics (such as CFTR genotype and disease severity), treatment requirements (such as hospital visits and use of antibiotics), and quality of life of people with cystic fibrosis who are taking Kaftrio prescribed by their doctor as part of their routine care. This is an observational study. Participants do not have to complete any additional study procedures or attend study visits, but will be asked to give informed consent for their data to be used in the study. The data collected in this study is information that is...
