Nearly half (47%) of children, and 11% of adults with cystic fibrosis have reported being unable to access a social worker. Cystic Fibrosis Trust calls on the Government to ensure everyone with CF has access to a CF social worker in light of the ‘concerning’ NHS staff shortages.
Today (9 June) we're celebrating Biomedical Science Day and highlighting the importance of this area of science in developing new medicines for cystic fibrosis (CF). To mark the date, we spoke to Jacob Bradbury, an adult with CF who is currently studying for a PhD in biological and medicinal chemistry (an area of biomedical science) at the University of Oxford. Jacob told us about his studies and how living with CF inspired his chosen career path.
As we publish the findings from our patient-reported experience surveys, Jana Witt, Clinical Quality Improvement Manager at the Trust, explores the key insights
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing inspiring stories from across the CF community. Cameron Hutchinson is an actor and recently starred in Hollyoaks. Here he shares how he balances CF with his acting career, his joy at becoming a father and how he’s determined to smash the glass ceiling
Ahead of CF Week, which takes place from 13 to 19 June, our Chief Executive David Ramsden is calling on the CF community to come together, raise awareness and unite for a life unlimited.
CF Week is fast approaching! Running from 13 to 19 June, it’s a chance for the community to unite, share stories, spread awareness, and help everybody understand more about CF.
Work can be important for many reasons – financial security, as part of our identity, for our mental health, our social lives, and to give us confidence. Today we're excited to launch our new ‘Work Forwards’ programme of employment support. Supported by the National Lottery, the programme will help empower people with cystic fibrosis to fulfil their career dreams and aspirations. Becky Kilgariff, Head of Information, Support and Programmes at the Trust, explains more.
Tilly is a member of our Youth Advisory Group, also known as YAG. This CF Week, YAG is launching a new project called ‘When I grow up...’ to show that CF shouldn’t have to limit your career choices and to inspire other young people to follow their dreams. Here, Tilly tells us more about the project, and her own hopes and dreams for the future.
