CF Week is fast approaching! Running from 13 to 19 June, it’s a chance for the community to unite, share stories, spread awareness, and help everybody understand more about CF.
Work can be important for many reasons – financial security, as part of our identity, for our mental health, our social lives, and to give us confidence. Today we're excited to launch our new ‘Work Forwards’ programme of employment support. Supported by the National Lottery, the programme will help empower people with cystic fibrosis to fulfil their career dreams and aspirations. Becky Kilgariff, Head of Information, Support and Programmes at the Trust, explains more.
Tilly is a member of our Youth Advisory Group, also known as YAG. This CF Week, YAG is launching a new project called ‘When I grow up...’ to show that CF shouldn’t have to limit your career choices and to inspire other young people to follow their dreams. Here, Tilly tells us more about the project, and her own hopes and dreams for the future.
Recent research has shown that 86% of the public don’t know that those with CF can’t meet each other in person due to the risk of passing on potentially deadly infections. And over two thirds of people are unaware that people with CF may have to take up to 60 pills a day just to stay healthy. This CF Week, we want to increase understanding and show what day-to-day life with CF is really like. CF mum and Trust supporter Lizzy, whose son Isaac has CF, blogs about the importance of raising awareness of an invisible condition like CF – and shares some of the #CFTruths she wishes people could know.
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing inspiring stories from across the CF community. Today’s story comes from CF researcher Alice Collins.
RNID and Cystic Fibrosis Trust have teamed up to fund a vital research project to prevent hearing loss caused by a commonly prescribed antibiotic. The £210,000 research project will run for three years.
A big thank you and well done to Cystic Fibrosis Trust ambassador Roger Black MBE, who appeared on Celebrity Pointless at the weekend to raise money and awareness for the Trust. We caught up with Roger to hear more about his support of the Trust, raising awareness of CF, and his guilty pleasure!
Today in the House of Commons, the Chancellor of the Exchequer, Rishi Sunak, set out measures to address the rising cost of living facing people across the UK, including those with CF.
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing stories from across the CF community about life with CF: the ups, the downs and everything in between. Here, Kareem, who has CF, and his sister Yasmin, sat down to have a chat with us about dealing with the condition as a family, being diagnosed in your teens, and showing a true representation of a diverse CF community.
