The aim of RECOVER is to examine the impact of Kaftrio® on key clinical outcomes in people with CF in a real-world setting. This clinical trial will use traditional methods of monitoring clinical outcomes in people with CF (e.g. standard lung function, nutrition, exacerbations and liver disease), as well as some new outcome measures not typically used in clinical trials such as lung clearance index (LCI) and spirometry controlled chest CT. These new measures may provide more detail of how taking Kaftrio® affects the lungs. This study will look at many important outcomes in a number of areas of health...
Staying active is a great way to take care of your physical and mental health, and many people with cystic fibrosis (CF) are encouraged to make exercise a regular part of their routine. But finding fun ways to keep fit and healthy can sometimes be a challenge. If you’re looking for a new way to get moving in 2022, we’ve got some new exercise videos to help you get inspired!
On the day we launch QuestionCF, an exciting projectto review your cystic fibrosis (CF) research priorities for the future, Nicole and Martyn Edwards - who have double the reason to be interested in the project - share their story and what’s on their CF research wishlist.
The cystic fibrosis (CF) community play a vital role in shaping our research, and it’s really important to us that we’re prioritising the topics that matter most to you. That’s why we’re asking for your help. We’re asking the whole community – people with CF, families, carers, professionals and researchers – to share your views and tell us what your CF research priorities are right now, in 2022.
Last year, Vanessa, whose 18-year-old daughter Shona has cystic fibrosis (CF), and her sister Rachel, organised a virtual FeBREWary event with friends and family, raising an incredible £1,700 for the Trust. As we gear up for the return of FeBREWary next month, they tell us about the inspiration behind their fundraising and why they won’t stop until everyone with CF can get the treatments they need.
Before we launch our new online forum next month, we want to hear from you to make sure that it is built and driven by the CF community’s needs. Can you fill out our quick survey?
A new year can bring feelings of uncertainty, especially in these difficult times. The last couple of years have been tough on all of us, and it’s normal to be experiencing a range of different emotions right now. If you’re struggling, remember you’re not alone. Here we share some tips and resources to help you take care of your wellbeing.
