A new YouGov poll shows that the majority of people (84%) don’t know that those with cystic fibrosis (CF) are advised not to meet in person, in case they pass on deadly bugs to one another.
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing stories from across the CF community about life with CF. Gillian, 36, from Glasgow had made the decision not to have children – until a ‘super response’ to Kaftrio changed everything.
Nearly half (47%) of children, and 11% of adults with cystic fibrosis have reported being unable to access a social worker. Cystic Fibrosis Trust calls on the Government to ensure everyone with CF has access to a CF social worker in light of the ‘concerning’ NHS staff shortages.
Today (9 June) we're celebrating Biomedical Science Day and highlighting the importance of this area of science in developing new medicines for cystic fibrosis (CF). To mark the date, we spoke to Jacob Bradbury, an adult with CF who is currently studying for a PhD in biological and medicinal chemistry (an area of biomedical science) at the University of Oxford. Jacob told us about his studies and how living with CF inspired his chosen career path.
As we publish the findings from our patient-reported experience surveys, Jana Witt, Clinical Quality Improvement Manager at the Trust, explores the key insights
Over the course of this year’s CF Week - taking place from 13 to 19 June - we will be sharing inspiring stories from across the CF community. Cameron Hutchinson is an actor and recently starred in Hollyoaks. Here he shares how he balances CF with his acting career, his joy at becoming a father and how he’s determined to smash the glass ceiling
Ahead of CF Week, which takes place from 13 to 19 June, our Chief Executive David Ramsden is calling on the CF community to come together, raise awareness and unite for a life unlimited.
