Support our campaigns
We tackle issues that matter – access to treatments, a fairer welfare system and excellent care for all – and the more people who join in, the louder our voice will be. Together, we have the power to create a brighter future where people with cystic fibrosis (CF) can live a life unlimited, so let’s speak up and make it happen.
Cost of living with CF
CF creates additional costs for those who live with it. That's why we're calling on the Government to tackle the financial burden of CF through fairer benefits and free prescriptions.
Access to treatment and care
We’re taking action to make sure everyone with CF can get appropriate treatment and care when they need it.
Start campaigning
Unite with us to make sure cystic fibrosis is high on the agenda for your local parliamentarian.
Our policy reports
Read our latest reports covering the financial, physical and mental burden of CF.
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Coalitions we're part of
- Charity Medicines Access Coalition
- Healthcare in Schools Alliance
- Continued use of Face Mask (with the NHS Confederation)
- BLF Taskforce for lung health
- Specialised Healthcare Alliance
- Association of the British Pharmaceutical Industry (ABPI) Patient Organisation Forum
- NHS Blood and Transplant (NHSBT) Cardiothoracic Patient Group
- #SafeAtWork Coalition
- Prescription Charges Coalition
- Disability Benefits Consortium
- Association of Medical Research Charities Policy and Public Affairs Working Group
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Get in touch
If you have any questions or want to help out, contact [email protected] – we'd love to hear from you!
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Latest news
The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
Our Helpline
Our Helpline is available to anyone looking for information or support with any aspect of cystic fibrosis, a listening ear, or just to talk things through.
Financial help
We provide a range of grants for people with cystic fibrosis and their families, support for those applying for benefits and information about prescription charges.