Support videos

Brothers, sisters and friends talk about all the things they always wanted to ask each other about cystic fibrosis.

Find out more about the different CF-causing mutations of the gene that makes the CFTR protein, and why precision medicines like Orkambi can help to correct this issue.

People with cystic fibrosis should never meet to avoid spreading dangerous bugs, or infections, to each other. Find out more about what this means in practice.

Most people with CF will experience problems with lung function, due to thicker, stickier mucus causing an increased risk of lung infections.

The pancreas makes digestive enzymes that help break down your food, allowing you to absorb nutrients. In people with CF the tubes that transport these enzymes can become blocked.

Around five to ten percent of people with CF will encounter liver problems. This is caused by bile becoming thicker, making it difficult for it to flow through the bile ducts.

Join Layla, Zaara, Jason, Jack and Noah as we find out more about cystic fibrosis (CF)!

This video, which is perfect for younger children, goes through the A to Z of cystic fibrosis, explaining issues like having to eat more fatty foods and the risk of infections.

In this video, which is suitable for older children, we asked six young people what it's like living with cystic fibrosis.

We produced two children's books for young children who have a parent with cystic fibrosis. You can download Seb's story as a PDF or order a physical copy here.

We produced two children's books for young children who have a parent with cystic fibrosis. You can download Rosie's story as a PDF or order a physical copy here.

Moving from paediatric into adult care can be a daunting time for young people with cystic fibrosis. Take a look at the work we're funding to support this transition.

Here's a overview of how one group of parents, teachers and a CF nurse supported a pupil living with cystic fibrosis during his first year at school.

What do you do if a new pupil who has cystic fibrosis joins the school? Teacher Fionnuala and inclusion officer Claire speak about what they learnt supporting a child with the condition.

What do you need to do if a child is starting school with cystic fibrosis? Nurse Karen Henney offers advice to teachers and parents in this FAQ.

Callum shares his top tips for what you should know before starting secondary school if you've got cystic fibrosis.

You've got CF and you've just finished school or college. Here are a few things you might want to think about when choosing your next steps if you're living with cystic fibrosis.

Meet some of the people featured in our body image booklet and find out more about some of the issues they've faced when it comes to body image and their cystic fibrosis.

Watch this 20-minute talk from Chloe, a member of our Youth Advisory Group and the NHS youth forum, who discusses her experiences with mental health. This was produced with support from our Building Brighter Futures programme.

This video of Tor discussing her experiences receiving a lung transplant was produced alongside our transplant resources.

This short film features the real story of Michelle, her experiences of receiving a CF diagnosis for her daughter, and the support she receives along the way. This video was produced alongside our new diagnosis resources, which include a new parent pack, and a pack for friends and family.

Two families and a CF doctor answer some questions on fertility for people affected by the condition. This video was produced alongside our starting a family booklet, which contains information to support you in your decision of whether or not to start a family if you have cystic fibrosis.

Hear from a mother with CF and a dietitian about what you might need to know about breastfeeding if you have CF, and whether it is the right decision for you.

Here, a mum with cystic fibrosis answers questions about her decision to start a family, including how she found out her partner was a CF gene carrier, what additional treatments she needed when she became pregnant and what it's like being a mum with CF.

In this video, a dad with cystic fibrosis talks about how long it took to start IVF treatment, what the process was like, and when he first discussed having children with his partner.

A CF specialist covers some of the questions that arise when a man or woman with CF decide to start a family. This video covers the challenges with conceiving, carrier testing to see if both parents carry a copy of the CF gene, the effect having a baby might have on a woman who has had a lung transplant, and the general impact having a baby could have on the health of someone with cystic fibrosis.

In this video, Helpline caller Ellie explains how she was supported by Sangeeta Enright, our Welfare and Rights Advisor, with claiming personal independence payment (PIP).

In this video series, you can watch the six-week workshop, run by Building Brighter Futures, that explores useful methods for applying for a job as well as your rights as someone with cystic fibrosis.