Support videos

We have loads of informative videos about living with cystic fibrosis, the science behind the condition and the support that we offer. You can explore all of our videos on our YouTube channel.

 

What is CF?

Open What is cystic fibrosis, exactly? video

What is cystic fibrosis, exactly?

Open Ask me anything about cystic fibrosis | What is cystic fibrosis? video

Ask me anything about cystic fibrosis | What is cystic fibrosis?

Brothers, sisters and friends talk about all the things they always wanted to ask each other about cystic fibrosis.

Open Gene variants video

Gene variants

Find out more about the different CF-causing mutations of the gene that makes the CFTR protein, and why precision medicines like Orkambi can help to correct this issue.

Open Cross-infection video

Cross-infection

People with cystic fibrosis should never meet to avoid spreading dangerous bugs, or infections, to each other. Find out more about what this means in practice.

How does CF affect the body?

Open Lungs video

Lungs

Most people with CF will experience problems with lung function, due to thicker, stickier mucus causing an increased risk of lung infections.

Open Pancreas video

Pancreas

The pancreas makes digestive enzymes that help break down your food, allowing you to absorb nutrients. In people with CF the tubes that transport these enzymes can become blocked.

Open Liver video

Liver

Around five to ten percent of people with CF will encounter liver problems. This is caused by bile becoming thicker, making it difficult for it to flow through the bile ducts.

Young people

Open CF: What's it all about? | A film for children video

CF: What's it all about? | A film for children

Join Layla, Zaara, Jason, Jack and Noah as we find out more about cystic fibrosis (CF)!

Open The A to Z of cystic fibrosis video

The A to Z of cystic fibrosis

This video, which is perfect for younger children, goes through the A to Z of cystic fibrosis, explaining issues like having to eat more fatty foods and the risk of infections.

Open The rest is up to me (a guide for friends) video

The rest is up to me (a guide for friends)

In this video, which is suitable for older children, we asked six young people what it's like living with cystic fibrosis.

Open Seb's Best Game (My Daddy has CF) | Support video

Seb's Best Game (My Daddy has CF) | Support

We produced two children's books for young children who have a parent with cystic fibrosis. You can download Seb's story as a PDF or order a physical copy here.

Open The Lost Collar Investigation (My Mummy has CF) | Support video

The Lost Collar Investigation (My Mummy has CF) | Support

We produced two children's books for young children who have a parent with cystic fibrosis. You can download Rosie's story as a PDF or order a physical copy here.

Open Youth work: transitioning to adult services | In clinic video

Youth work: transitioning to adult services | In clinic

Moving from paediatric into adult care can be a daunting time for young people with cystic fibrosis. Take a look at the work we're funding to support this transition.

Open When your child starts school with CF | Support video

When your child starts school with CF | Support

Here's a overview of how one group of parents, teachers and a CF nurse supported a pupil living with cystic fibrosis during his first year at school.

Open Starting school: Teachers Q&A | Life with CF | Cystic Fibrosis video

Starting school: Teachers Q&A | Life with CF | Cystic Fibrosis

What do you do if a new pupil who has cystic fibrosis joins the school? Teacher Fionnuala and inclusion officer Claire speak about what they learnt supporting a child with the condition.

Open Starting school: Nurse Q&A | Life with CF | Cystic Fibrosis Trust video

Starting school: Nurse Q&A | Life with CF | Cystic Fibrosis Trust

What do you need to do if a child is starting school with cystic fibrosis? Nurse Karen Henney offers advice to teachers and parents in this FAQ.

Open 5 tips for starting secondary school | Cystic fibrosis news video

5 tips for starting secondary school | Cystic fibrosis news

Callum shares his top tips for what you should know before starting secondary school if you've got cystic fibrosis.

Open School's out, what's next? | Support video

School's out, what's next? | Support

You've got CF and you've just finished school or college. Here are a few things you might want to think about when choosing your next steps if you're living with cystic fibrosis.

Mental health

Open Body image and cystic fibrosis l Support video

Body image and cystic fibrosis l Support

Meet some of the people featured in our body image booklet and find out more about some of the issues they've faced when it comes to body image and their cystic fibrosis.

Open BBF talks: mental health and cystic Fibrosis | Support video

BBF talks: mental health and cystic Fibrosis | Support

Watch this 20-minute talk from Chloe, a member of our Youth Advisory Group and the NHS youth forum, who discusses her experiences with mental health. This was produced with support from our Building Brighter Futures programme.

Transplant

Open Transplants: Tor's lung operation | Support video

Transplants: Tor's lung operation | Support

This video of Tor discussing her experiences receiving a lung transplant was produced alongside our transplant resources.

New diagnosis

Open New Diagnosis | Parents video

New Diagnosis | Parents

This short film features the real story of Michelle, her experiences of receiving a CF diagnosis for her daughter, and the support she receives along the way. This video was produced alongside our new diagnosis resources, which include a new parent pack, and a pack for friends and family.

Starting a family

Open Starting a family if you have cystic fibrosis | Support video

Starting a family if you have cystic fibrosis | Support

Two families and a CF doctor answer some questions on fertility for people affected by the condition. This video was produced alongside our starting a family booklet, which contains information to support you in your decision of whether or not to start a family if you have cystic fibrosis.

Open Breastfeeding for mums with CF | Support video

Breastfeeding for mums with CF | Support

Hear from a mother with CF and a dietitian about what you might need to know about breastfeeding if you have CF, and whether it is the right decision for you.

Open Ask a Mum video

Ask a Mum

Here, a mum with cystic fibrosis answers questions about her decision to start a family, including how she found out her partner was a CF gene carrier, what additional treatments she needed when she became pregnant and what it's like being a mum with CF.

Open Ask a Dad video

Ask a Dad

In this video, a dad with cystic fibrosis talks about how long it took to start IVF treatment, what the process was like, and when he first discussed having children with his partner.

Open Ask a Doctor video

Ask a Doctor

A CF specialist covers some of the questions that arise when a man or woman with CF decide to start a family. This video covers the challenges with conceiving, carrier testing to see if both parents carry a copy of the CF gene, the effect having a baby might have on a woman who has had a lung transplant, and the general impact having a baby could have on the health of someone with cystic fibrosis.

Work, welfare and rights

Open Welfare, rights and PIP | Support video

Welfare, rights and PIP | Support

In this video, Helpline caller Ellie explains how she was supported by Sangeeta Enright, our Welfare and Rights Advisor, with claiming personal independence payment (PIP).

Open Effective job searching - Preparing for work with CF (1/6) | Support video

Effective job searching - Preparing for work with CF (1/6) | Support

In this video series, you can watch the six-week workshop, run by Building Brighter Futures, that explores useful methods for applying for a job as well as your rights as someone with cystic fibrosis.

Consensus documents

Our consensus documents are designed for clinicians and allied health professionals involved in treating people with cystic fibrosis.

Publications

Find information on all aspects of life with CF in our booklets, factsheets, leaflets, information packs and more.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.

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