Find our statements and responses to events affecting people with cystic fibrosis (CF) here. 

If you need to get in touch with our press team, please contact or call on 020 3795 2193.


Joint statement from the UKCFMA and UKPPCF on the emotional and mental health effects of new CFTR modulators in people with CF

Joint letters with leading health charities to Health Secretary Matt Hancock and Chancellor Rishi Sunak to demanding answers for those who are most vulnerable to COVID-19 (14 October 2020)

Joint letter with Age UK and other charities to the Chancellor, The Rt Hon Rishi Sunak MP, calling for support for people who may not feel safe enough to return to their work place after shielding. (31 July 2020)

Joint letter with Macmillan Cancer Support and other charities to The Rt Hon Michael Gove MP in the Cabinet Office, calling for clearer guidance on shielding and what the future may hold as restrictions are eased (28 May 2020)

Response to Environment, Food and Rural Affairs Committee Inquiry into food supply during the Coronavirus pandemic (20 May 2020)

Letter to Rishi Sunak from David Ramsden regarding financial support for people with CF during coronavirus (27 March 2020)

Letters to Arlene Fosterthe Department for Environment, Food and Rural AffairsMark Drakeford and Nicola Sturgeon regarding plans for social shielding (27 March 2020)

Letter to UK supermarkets regarding access to food for people with CF during the coronavirus outbreak (26 March 2020)

The Cystic Fibrosis Trust's Safeguarding policy statement (November 2019) 

Letter to Petitions Committee from the Cystic Fibrosis Trust (11 June 2019)

Letter from David Ramsden, Chief Executive, to Dr Sarah Wollaston MP in response to NHS, NICE and Vertex correspondence (4 June 2019)

Statement on the NHS offer to Vertex for Orkambi and Symkevi (23 May 2019)

Letter from Ian Austin MP to Prime Minister Theresa May (16 May 2019)

Marking the anniversary of PM Theresa May wishing for a "speedy resolution" on Orkambi (16 May 2019)

Cystic Fibrosis Trust calls for immediate access to life-saving drugs (7 March 2019)

Creon shortage - Oxfordshire & Surrey (26 July 2018)

Mylan announces temporary Creon shortage (12 June 2018)

Cystic Fibrosis Trust appoints David Ramsden as new Chief Executive (12 October 2016)

The Cystic Fibrosis Trust's response to the NHS England decision that complex heart surgery should no longer be provided at the Royal Brompton & Harefield NHS Foundation Trust (8 July 2016).

The Cystic Fibrosis Trust's response to the NHS England funding decision for Ivacaftor (Kalydeco) for two to five year olds (4 August 2016).

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What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

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